Following are people and places that have experience diagnosing and dealing with the problems people with Lesch-Nyhan disease face. If you are a provider and want to have your name appear on the list, please contact us with information you want listed.
Dr Frédéric Sedel
Groupe hospitalier Pitié-Salpêtrière
Fédération des maladies du sytème nerveux
47 Boulevard de l'hôpital
75013 Paris, France
Phone: (+33) (0)1 42 16 17
Fax: (+33) (0)1 42 16 27
Email: frederic.sedel@psl.aphp.fr
Pr Olivier Dulac and Dr. Nadia Bahi-Buisson
Hôpital Necker-Enfants Malades
Department of Neurology
149 rue de Sèvres
75743 Paris Cedex 15, France
Phone: +01 42 19 26 99
Fax: +01 42 19 26 92
Email: nadia.bahi-buisson@nck.aphp.fr
Prof. Juan Garcia Puig
La Paz University Hospital
Division of Internal Medicine
Madrid, Spain
Phone: (+34) 1 727 1988
Fax: (+34) 1 358 3717
J.E. Visser, MD, PhD
Radboud University Nijmegen Medical Center
Department of Neurology (HP 935)
PO Box 9101
6500 HB, Nijmegen, The Netherlands
Phone: (+31) (0) 24 36 1345
Fax: (+31) (0)24 354 1122
Email: jasper.visser@radboudumc.nl
H.A. Jinnah, MD, PhD
Emory University, School of Medicine
Departments of Neurology & Human Genetics
Woodruff Memorial Research Building
101 Woodruff Circle, Suite 6305
Atlanta, GA 30322
Phone: 404 727 9107
Fax: 404 712 8576
Gary E. Eddey, MD
Matheny Medical and Educational Center
P.O. Box 339, Highland Avenue
Peapack, New Jersey 07977, United States
Phone: 908-234-0011
Fax: 908-719-2137
Email: info@matheny.org