Believe it or not, there are lots of ways you can help in the search to find a cure. There are a few foundations that are really committed to finding answers, and they need all the help they can get. Any donations you make will ultimately help find a cure faster.
The researchers need your help too. If you are invited to participate in clinical studies, do it! The researchers cannot learn anything about the disease if no one helps them to study it. To learn about the clinical studies and how you might participate, join the mailing list.